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    Suchitra Acharya, MD

    Director Hemostasis and Thrombosis Center
    Cohen Children’s Medical Center, Northwell Health
    New Hyde Park, New York, United States

    Suchitra S. Acharya, MD, Director Northwell Health Hemostasis and Thrombosis Center (HTC), New Hyde Park, NY, USA

    I am a trained Pediatric Hematologist/ Oncologist with a committed interest and passion for diagnosing and treating bleeding and clotting disorders in children and adults with inherited bleeding disorders. I direct the federally designated Northwell Health HTC which is a life span clinic offering comprehensive care for children and adults with inherited bleeding disorders. I have been privileged to have the opportunity to establish the first North American ultra-Rare Bleeding Disorder (NARBD) registry which provided us an estimate of the distribution of these ultra-rare disorders. More recently as part of the American Thrombosis and Hemostasis Network (ATHN) ultra-Rare Bleeding Disorders (RBDs) subcommittee we have published data on ultra RBDs collected as part of the ATHN- CDC project which shed light on the need for accurate data collection. I am on the Steering committee for ATHN -10 offering genetic testing for ultra RBDs using NexGen sequencing to understand if there is a genotype-phenotype correlation. As a member of the Working Group(WG) and co-chair WG 3 for ultra RBDs for the recently concluded National Hemophilia Foundation- State of the Science Research Summit we established national priorities for clinical care, research, and infrastructure for ultra RBDs which was published as a white paper. I am a member of the steering committee for the International Fibrinogen Physician Patient Association (IFPPA) to design a platform for improving understanding of inherited fibrinogen disorders for clinical and research collaborations with patients' input living with these rare disorders. Furthermore, my lab is investigating the role of viscoelastic tools (ROTEM) and thrombin generation assays in inherited bleeding disorders and pediatric cancers to help us understand the bleeding phenotype or hypercoagulable state for developing appropriate preventative and management strategies.

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