PB1304 - Development of a Multidisciplinary Bleeding Disorder Committee in a reference hospital

Background: According the recommendations of the World Federation of Hemophilia, optimal care of people with hemophilia, especially those with severe forms of the disorder, requires treatment and comprehensive care provided by a multidisciplinary team of healthcare professionals with expertise and experience in hemophilia.

Aims: To report our experience after the development of a multidisciplinary Congenital Bleeding Disorder Committee (CBDC) in a Hospital (tertiary, high complexity) in order to improve the management in patients with hemophilia.

Methods: In June 2022, the Hospital's quality department was asked to set up and approve the CBDC under the coordination of a specialist in hematology with experience in hemophilia. The composition, objectives and functions are proposed and its activity and decisions are evaluated after three months of implementation.

Results: The core members of the multidisciplinary committee consisted of two 2 clinical hematologists, 1 specialized nurse, 1 medical laboratory specialist, 2 musculoskeletal specialists, 1 infectious diseases specialist and 1 pharmacist specialist with expertise in hemophilia. The approved objectives were both to ensure the best health and quality-of-life outcomes for people with hemophilia. Meetings were planned every month.

After six months, 24 patients were evaluated, 14 patients were referred to some of the members of the committee and 8 patients were planned for a switch in their treatment. 21 patients were severe hemophilia patients, 2 moderate hemophilia patients and one case was a severe plasminogen deficiency.

Conclusion(s): The implementation of a CBDC discussed by the hospital management has allowed discussion and diagnostic and therapeutic decision-making in a multidisciplinary approach. Clinical committees are needed as well as an individualized follow up in order to get the best health and quality of life outcomes for hemophilia patients.