Donna Coffin, MSc Epid (she/her/hers)

Director, Research & Education
World Federation of Hemophilia
Montreal, Quebec, Canada

Donna Coffin, MSc is currently the Director, Research & Education at the World Federation of Hemophilia (WFH) in Montreal, Canada. Donna is an epidemiologist and has spent much of her career conducting evidence-based research for health care and regulatory agencies around the world. Since joining the WFH in 2016, Donna has led the Research & Education department, with focus on the development of the World Bleeding Disorders Registry and the WFH Gene Therapy Registry. Her team is also responsible for all WFH research activities, including the WFH Annual Global Survey, the WBDR Research Support Program, and the production of evidence-based advocacy tools used to promote treatment for all.

Presentation(s):

• OC 20.5 - The WFH Gene Therapy Registry: A Collaborative Approach Towards a Global Resource for the Long-term Follow-up of People with Hemophilia Treated with Gene Therapy

  Sunday, June 25, 2023
  15:45 – 16:00 ET

• PB0191 - myGTR: a patient engagement tool from the World Federation of Hemophilia Gene Therapy Registry

  Sunday, June 25, 2023
  18:30 – 19:30 ET

• PB0628 - The World Federation of Hemophilia Living Guidelines Model

  Monday, June 26, 2023
  18:30 – 19:30 ET

• PB0827 - WFH World Bleeding Disorders Registry Launches the First Global Data Collection on People with von Willebrand Disease

  Monday, June 26, 2023
  18:30 – 19:30 ET

• PB0837 - Analysis of the change in diagnosis of von Willebrand disease by region and economic status

  Monday, June 26, 2023
  18:30 – 19:30 ET

• PB1254 - A New Tool to Assist in Treatment Selection – The World Federation of Hemophilia (WFH) Shared Decision-Making (SDM) Tool

  Tuesday, June 27, 2023
  18:30 – 19:30 ET