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    Oral Communication

    Platelet Disorders, VWD, and Thrombotic Microangiopathies
    Oral Communication Session

    OC 60 - von Willebrand Disease (VWD) Clinical

    Tuesday, June 27, 2023
    14:45 – 16:00 ET
    Room:516

    Session Available Online As: Live-Stream and On-Demand

      Moderator(s)

    • Ferdows Atiq, MD, MSc, PhD

      Senior Research Fellow
      Irish Centre for Vascular Biology, School of Pharmacy and Biomolecular Sciences, Royal College of Surgeons in Ireland, Dublin, Ireland
      Dublin, Dublin, Ireland

    • Ross Baker, MD

      Professor of Haematology
      Haematology
      Health Futures Institute, Murdoch University, Perth, Australia
      Perth, Western Australia, Australia

    Presentations:

    • 14:45 – 15:00 ET
      Delineating von Willebrand factor genetic variants in patients with a von Willebrand disease diagnosis

      Co-Author: Pamela A. Christopherson – Versiti Blood Research Institute

      Presenting Author: Veronica H. Flood, MD (she/her/hers) – Medical College of Wisconsin

      Co-Author: Sandra Haberichter, PhD – Versiti Blood Research Institute

      Co-Author: Brooke Sadler, PhD, MA – Department of Pediatrics, School of Medicine, Washington University

      Co-Author: Jorge Di Paola, MD (he/him/his) – Washington University School of Medicine

      Co-Author: Robert Montgomery – Medical College of Wisconsin, Versiti Blood Research Institute, Children's Research Institute

    • 15:00 – 15:15 ET
      Population-based prevalence and mutational landscape of von Willebrand disease using large-scale genetic databases

      Presenting Author: Omid Seidizadeh, MSc, Phd student (he/him/his) – Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Milan, Italy

      Co-Author: Andrea Cairo – Fondazione IRCCS Ca’Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center

      Co-Author: Luciano Baronciani – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy

      Co-Author: Luca Valenti – Department of Pathophysiology and Transplantation, Università degli Studi di Milano

      Co-Author: Flora Peyvandi, MD, PhD (she/her/hers) – IRCCS Ca' Granda Maggiore Hospital Foundation, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milano, Italy; Università degli Studi di Milano, Department of Pathophysiology and Transplantation, Milano, Italy

    • 15:15 – 15:30 ET
      Prevention of Hemorrhage After Implantation of Mechanical Circulatory Support With a Purified Von Willebrand Factor Concentrate: results of the early terminated randomized controlled PHAM trial

      Presenting Author: Antoine Rauch (he/him/his) – Univ.Lille, Inserm, CHU Lille, Institut Pasteur de Lille, U1011-EGID, F-59000 Lille, France

      Co-Author: Guillaume Lebreton – Groupe Hospitalier La Pitié Salpêtrière-Charles Foix, 55577, Service de Médecine Intensive-Réanimation, Institut de Cardiologie, Paris, France

      Co-Author: Mouhamed D Moussa – Pôle d’Anesthésie-Réanimation, CHU Lille, F59000, Lille, France.

      Co-Author: André Vincentelli – Cardiac Surgery, Lille Hospital University, 59000, Lille, France

      Co-Author: Erwan Flecher – Department of Thoracic and Cardiovascular Surgery, Pontchaillou University Hospital, University of Rennes 1, Signal and Image Treatment Laboratory (LTSI), Inserm U1099, Rennes, France.

      Co-Author: Olivier Bouchot – Department of Cardiac Surgery, Dijon University Hospital, 21000 Dijon, France

      Co-Author: Camille Dambrin – Department of Thoracic and Cardiovascular Surgery, Rangueil University Hospital, Toulouse, France

      Co-Author: Bertrand Rozec – Cardiothoracic and Cardiovascular Intensive Care Unit, Laennec University Hospital, Saint-Herblain, France

      Co-Author: Laurent Barandon – Cardiovascular Surgery Department, Haut-Lévêque Hospital, CHU Bordeaux, Pessac, France

      Co-Author: Emmanuelle Jeanpierre – Lille University Hospital, Hematology Transfusion, 59000, Lille, France

      Co-Author: Nadine Ajzenberg – Laboratoire d'Hématologie, AP-HP, Hôpital Bichat Claude-Bernard, Paris, France.

      Co-Author: Yohann Repessé, MD-PhD (he/him/his) – CRC-MHC Caen

      Co-Author: Emmanuel De Maistre – Hématologie Biologique, CHU, Dijon

      Co-Author: Elodie Boissier – Laboratoire d'Hématologie, Hôpital Laënnec, CHU de Nantes, France

      Co-Author: David Smadja, PhD (he/him/his) – Université Paris Cité

      Co-Author: Fabienne Nedelec-Gac – Department of Hematology/Hemostasis, Pontchaillou University Hospital of Rennes, Rennes, France

      Co-Author: Sophie Voisin – Laboratoire d'Hématologie, Centre Hospitalier Universitaire de Toulouse, Toulouse, France.

      Co-Author: Silvy Laporte – Department of Clinical Pharmacology and Clinical Research Unit, University Hospital of Saint-Etienne; UMR 1059 DVH-Sainbiose, Jean Monnet University, Saint-Etienne; INSERM F-CRIN INNOVTE Network France

      Co-Author: Julien Labreuche – Department of Biostatistics, CHU Lille, University of Lille, France

      Co-Author: Sophie Susen, MD, PhD (she/her/hers) – Univ. Lille, Inserm, CHU Lille, Institut Pasteur de Lille, U1011- EGID, F-59000 Lille, France

    • 15:30 – 15:45 ET
      Joint damage in patients affected by Von Willebrand disease: a single-center experience

      Presenting Author: Roberta Gualtierotti, MD, PhD – Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico, Centro Emofilia e Trombosi Angelo Bianchi Bonomi

      Co-Author: Sara Arcudi, MD – Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico, Centro Emofilia e Trombosi Angelo Bianchi Bonomi

      Co-Author: Andrea Giachi – Università degli Studi di Milano, Department of Pathophysiology and Transplantation

      Co-Author: Margherita Smania – Università degli Studi di Milano, Department of Pathophysiology and Transplantation

      Co-Author: Addolorata Truma, MD – Università degli Studi di Milano, Department of Pathophysiology and Transplantation

      Co-Author: Alessandro Ciavarella, MD (he/him/his) – Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico, Centro Emofilia e Trombosi Angelo Bianchi Bonomi

      Co-Author: Valentina Begnozzi – Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy

      Co-Author: Elena Boccalandro – Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy

      Co-Author: Eugenia Biguzzi, MD – Hematology clinic, Oncology Institute of Southern Switzerland, EOC

      Co-Author: Simona Maria Siboni – Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center

      Co-Author: Flora Peyvandi, MD, PhD (she/her/hers) – IRCCS Ca' Granda Maggiore Hospital Foundation, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milano, Italy; Università degli Studi di Milano, Department of Pathophysiology and Transplantation, Milano, Italy

    • 15:45 – 16:00 ET
      Response to desmopressin in type 2N von Willebrand's disease: a genotype-phenotype analysis on a cohort of 121 patients

      Presenting Author: Melanie Daniel, MD – Hematology Transfusion, Lille Hospital University, 59000, Lille, France

      Co-Author: Antoine Rauch (he/him/his) – Univ.Lille, Inserm, CHU Lille, Institut Pasteur de Lille, U1011-EGID, F-59000 Lille, France

      Co-Author: Fabienne Volot – Dijon University Hospital, Hemostasis Clinical Center, Dijon, France

      Co-Author: Katia Pouymayou – Marseille University Hospital, Hemostasis Clinical Center, APHM, Marseille, France

      Co-Author: Brigitte Pan-Petesch – CRC-MHC Brest – Service Hématologie, Unité Hémostase Clinique

      Co-Author: Sabine Castet – Bordeaux University Hospital, Hemostasis Clinical Center, Bordeaux, France

      Co-Author: Nathalie Itzhar – Service d’Hématologie Biologique, Hôpital Lariboisière, Assistance Publique–Hôpitaux de Paris, Paris

      Co-Author: Agnès Veyradier – Service d’Hématologie Biologique, Hôpital Lariboisière, Assistance Publique–Hôpitaux de Paris and EA3518, Institut de Recherche Saint Louis, Université de Paris, Paris

      Co-Author: Yohann Repessé, MD-PhD (he/him/his) – CRC-MHC Caen

      Co-Author: Catherine Ternisien – Nantes University, CHU, Haemostasis Clinical Center, Nantes, France

      Co-Author: Marc Trossaert – Nantes University Hospital, Haemostasis Clinical Center, Nantes, France

      Co-Author: Pierre Boisseau – CHU Nantes, Service de Génétique Médicale, Nantes, France

      Co-Author: Emmanuelle Jeanpierre – Lille University Hospital, Hematology Transfusion, 59000, Lille, France

      Co-Author: Camille Paris – Hematology Transfusion, Lille Hospital University, 59000, Lille, France

      Co-Author: Christophe Zawadzki, PharmD PhD – Lille University, CHU, Department of Haematology, Lille, France

      Co-Author: Maximilien DESVAGES – Lille University Hospital, Hematology Transfusion, 59000, Lille, France

      Co-Author: Annabelle Dupont, Pharm D PhD – Univ. Lille, Inserm, CHU Lille, Institut Pasteur de Lille, U1011-EGID, F5900 Lille, France

      Co-Author: Jenny Goudemand – Hematology Transfusion, Lille Hospital University, 59000, Lille, France

      Co-Author: Sophie Susen, MD, PhD (she/her/hers) – Univ. Lille, Inserm, CHU Lille, Institut Pasteur de Lille, U1011- EGID, F-59000 Lille, France